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Nursing and Midwifery Education, Faculty of Medicine

Child health and family care  
Eva Nordmark 
Titles

RPT, PhD, Senior lecturer, Associate Professor, Specialist in Pediatrics


Function

Physiotherapist, Research leader at the Research platform for Disability studies in Habilitation. Centre for Teaching and Learning, Faculty of Medicine, Lund University


Department/Unit

Department of Health Sciences, Faculty of Medicine, Lund University,Sweden.


Address: P.O Box 157, SE-221 00 Lund, Sweden.
E-mail: eva.nordmark@med.lu.se
Phone: +46 46 222 89 59
Cell phone: +46 (0)767 81 44 88
Fax: +46 46-222 18 96
  		myImage  
Year of dissertation: 2000 
Thesis:

Measurement of Function in Children with Cerebral Palsy. Faculty of Medicine, Lund University, 2000.

 

 

 
Current position: Research leader at the Research platform for Disability studies in Habilitation (collaboration between Habilitation & Assistive Technology Service, Region Skåne, Lund University, Malmö högskola),Senior lecturer at the program Master of Medical Science and Centre for Teaching and Learning, Faculty of Medicine.  
Clinical speciality:

Pediatric Physiotherapy

 
Current
Research Field:

In collaboration with Region Skåne and Malmö University, the Faculty of Medicine, LU has established a four-year funded Research Platform for Disability Studies, aiming to strengthen multidisciplinary habilitation research with strong collaboration between theory and practice. The overall goal of the research is support situations in daily life and enhance quality of life for people with functional limitations.

 

 In order to promote health and quality of life for people with functional limitations, in the whole lifespan perspective research that can support the transition into adulthood is important. Factors as  e.g. needs, motivation, attitudes, opportunities and  barriers for access to participate in activities in the society are important to study from the children’s, adolescents and young adults own perspective. Thus both qualitative and quantitative approaches (open approach and related to International Classification of Functioning, Disability, and Health). Health economic factors will also be of importance and studied. Strong emphases will be put on the implementation of the results.

 

Since 1993 my research has been focused on epidemiology, early detection, health promotion and the natural course in a long-term follow-up in children, adolescents with Cerebral Palsy (CP) and their families. Cerebral palsy has been related to child- and young adulthood but today there are more adults living with CP than children. Parents often need to continue being the caregivers when their child grows up and the contact with health care providers are radically reduced when the child leaves the child health care system.

In 1994 we started a health promotion program for children with CP in southernmost part of Sweden, CPUP (Follow-up program for CP). CPUP has dramatically improved the situation for children with CP e.g. a decrease of dislocation of the hip to zero and severe contractures with 70%. This research has a multi- and interdisciplinary approach and the Depts. of Paediatrics, Orthopaedics, Clinical Neurophysiology, Neurosurgery at Lund University hospital and the organisation for Habilitation & Assistive technology service are collaborating. In 2005 it became a National Quality Register and now is whole Sweden, Norway, parts of Danmark and Island involved (www.cpup.se).  A similar health promotion program for young adults is missing but needed. A national multidisciplinary reference group in collaboration with RBU (Swedish Association for Children and Youth with Disabilities) are performing a pilot-project. Based on the outcomes web-based follow-up routines will be constructed. A source for multidisciplinary long-term follow up research, from early child- to adulthood will be a possibility. This research will enhance health promotion and quality of life for people with cerebral palsy and their families through the whole lifespan.

Other areas of my research are; measurement methodology research e.g. translations, culture adaptations, validity and reliability studies are parts of the research enhancing implementation of standardized outcome measurements for quality assurance and evidence based practice (EBP) in the field of pediatric habilitation.

Pedagogical current research

Together with my colleague, Senior lecturer Christina Gummesson I got the Lund University pedagogic award 2008 for developing online courses in Movement Science Theories and Practice for postgraduate students within the first multidisciplinary Master of Medical Science programme at Faculty of Medicine. The courses are research preparatory which is also strengthened by the pedagogical approach used; Inquiry Based Learning (IBL), where learning outcomes are the starting point from which the participants own needs can direct the learning and working process. All course activities are focusing on the participants information-processing-skills from observation and expressed question to the synthesis. The pedagogical approach is selected to enhance inter-professional and lifelong learning. Within this courses digital learning resources such as PodCasts, screen cast and self assessments are developed, that also can be useful for campus students as well as other teachers. The courses contribute to internationalization and have sustainable structures.

The same year we became members of the Teaching Academy at the Faculty of Medicine, Lund university. Pedagogical research are important and together our research are focused on learning- and study strategies and how students self confidence and autonomy can be scaffolded in a professional and evidence based life-long learning perspective. We also collaborate with Ariel University, Israel and Melbourne University, Australia.

 

 
Co-workers, postdoc
level and above:

Inger Hallström, Professor in paediatric nursing, Research leader for the research group: Child , health and family care. Dept of Health Sciences, Faculty of medicine, Lund university, Sweden.

Gunnar Hägglund. MD, PhD, Associated Professor in Paediatric Orthopaedics

Division of Ortopaedics, Dept of Clinical Sciences (Lund), Lund University. Children’s hospital, Skåne University Hospital. Responsible for the National Quality register for children and youth with cerebral palsy, CPUP.Sweden.

 

Lena Westbom, MD.PhD.Neuropediatrician.

Division of Paediatrics, Dept of Clinical Sciences (Lund), Lund University. Children’s hospital, Skåne University Hospital.Sweden.

 

Annika Lundkvist Josenby. PhD. Division of Paediatrics, Dept of Clinical Sciences (Lund), Lund University. Children’s hospital, Skåne University Hospital.Sweden.

Ulrika Uddenfeldt Wort, MD, MSc, PhD, Neuropediatrician.

Division of Paediatrics, Dept of Clinical Sciences, Lund University. Children’s hospital (Malmö), Skåne University Hospital. Sweden.

Gert Andersson.MD, PhD, Associated Professor in Clinical Neurophysiology,Dept of Clinical Sciences (Lund), Lund University. Skåne University Hospital, Sweden .

 

Christina Gummesson, RPT, PhD, senior lecturer. Dept of Health Science, Division of Physiotherapy. Centre for Teaching and Learning, Faculty of Medicine. Lund University.

Cataharina Sjödahl , RPT, PhD, senior lecturer. Dept of Health Science, Division of Physiotherapy. Centre for Teaching and Learning, Faculty of Medicine. Lund University.

Dr Tamar Jacob, Center of Samaria, Ariel University, Israel. Professor Gillian Webb, Dr Louisa Remedious,  Dr. Doa, El-Ansary, Melbourne University, Australia

 
Publications:

Publications:

1986- 1999

  1. Andreasson B, Jonson B, Kornfält R, Nordmark E, Sandström C. Long term Effect of   Physical Exercise on working Capacity and Pulmonary Function in Cystic Fibrosis. Acta Paediatrica Scandinavica 76:70-75, 1987.  
  2. Nordmark E, Hägglund G, Jarnlo G-B. Reliability in Gross Motor Function Measure. Scandinavian Journal of Rehabilitation Medicine 29:25-28, 1997. Nordmark E, Orban K, Jarnlo G-B, Hägglund G. The American Paediatric Evaluation of Disability Inventory (PEDI). Applicability of PEDI in Sweden for children aged 2.0-6.9 years. Scandinavian Journal of Rehabilitation Medicine 31:95-100, 1999.

2000- 2004

  1. Nordmark E. Measurement of Function in Children with Cerebral Palsy. p.1-102. Thesis 2000. Studentlitteratur AB, Lund, Sweden.
  2. Nordmark E, Jarnlo G-B, Hägglund G. Comparison between Gross Motor Function Measure and paediatric Evaluation of Disability Inventory in assessing motor function in children undergoing selective dorsal rhizotomy. Developmental Medicine & Child Neurology 42:245-252, 2000.                                                              
  3. Nordmark E, Hägglund G, Lagergren J. Part I. Cerebral palsy in Southern Sweden- prevalence and clinical features. Acta Paediatric 90:1271-1276, 2001.
  4. Nordmark E, Hägglund G, Lagergren J. Part II. Cerebral palsy in Southern Sweden- Gross motor function and disabilities. Acta Paediatrica 90:1277-1282, 2001.
  5. Nordmark E, Andersson G. Wartenberg pendulum test- a method study for objective quantification of muscle tone in children with spastic diplegia undergoing selective dorsal rhizotomy. Developmental Medicine & Child Neurology  44:26-33, 2002.

2005-2009

  1. Hägglund G, Andersson S, Dűppe H, Lauge-Pedersen H, Nordmark E, Westbom L. Prevention of dislocation of the hip in children with cerebral palsy. The first ten years of a population-based prevention programme. J Bone Joint Surg (Br) 2005; 87-B:95-101.  
  2. Hägglund G, Andersson S, Dűppe H, Lauge-Pedersen H, Nordmark E, Westbom L. Prevention of severe contractures might replace multilevel surgery in cerebral palsy: results of a population-based health care programme and new techniques to reduce spasticity. Journal of Pediatrics B 2005, 14:269-273.                                                                                                                                                           
  3. Westbom L, Hägglund G, Nordmark E. Cerebral Palsy in a total population of 4-11 year olds in southern Sweden. Prevalence and distribution according to different CP classification systems BMC Pediatr. 2007 Dec 5;7 (1):41 doi:10.1186/1471-2431-7-41
  4. Nordmark E, Josenby AL, Lagergren J, Andersson G, Strömblad LG, Westbom L. Long-term outcomes five years after selective dorsal rhizotomy. BMC Pediatr. 2008 Dec 14;8:54.
  5. Lundkvist-Josenby A, Jarnlo G-B, Gummesson C, Nordmark E. Longitudinal Construct Validity of the GMFM-88 Total Score and Goal Total Score and the GMFM-66 Score in a 5-Year Follow-up Study. Phys Ther.2009:89:342-350.
  6. Nordmark E, Hägglund G, Lauge-Pedersen H, Wagner P, Westbom L. Development of lower limb range of motion from early childhood to adolescence in cerebral palsy - a population based study. BMC Medicine 2009,7:65.

2010-  

  1. Westbom L, Lundkvist Josenby A, Wagner P, Nordmark E. Growth in Children with Cerebral Palsy during five years after Selective Dorsal Rhizotomy: a practice-based study.  BMC Neurology 2010, 10:57.
  2. Westbom L, Bergstrand L, Wagner P, Nordmark E. Survival at 19 years of age in a total population of children and young people with cerebral palsy. Dev Med Child Neurol. 2011 Jul 11. doi: 10.1111/j.1469-8749.2011.04027.x
  3. Jacob T, Gummesson C,Nordmark E, El-AnsaryD, Remedios,Webb G., Perceived stress and sources of stress among physiotherapy students from three countries.Journal of Physical therapy Education, March 2012.
  4.  Gummesson C, Nordmark E. Self-reflections in an online course – Reflecting learning strategies? Advances in Physiotherapy, Ahead of Print : Pages 1-7(doi: 10.3109/14038196.2012.671848)
  5. Josenby AL, Wagner P, Jarnlo GB, Westbom L, Nordmark E.Motor function after selective dorsal rhizotomy:a ten year practice-based follow-up studie. Dev Med Child Neurol. 2012 May;54(5):429-35. doi: 10.1111/j.1469-8749.2012.04258.x. Epub 2012 Mar 21.

                                                                                                                                                                                                                                         
Scientific papers published in national journals

  1. Kornfält R, Andreasson B, Nordmark E, Jonson B. [ Breathing exercise and physical training in cystistic fibrosis]. Läkartidningen. 1986 Mars 5; 83 (10):851-3. (Swedish).
  2. Hägglund G, Andersson S, Nordmark E, Sundén G, Westbom L.[All children with cerebral palsy are systematically followed-up. A project on cooperation between pediatric orthopedics and Pediatric rehabilitation in Southern Sweden]. Läkartidningen. 1998 Apr 8;95(15):1666-7. (Swedish).
  3. Westbom L, Hägglund G, Nordmark E, Lundkvist A, Strömblad L-G. 2003. Samlat grepp ger goda resultat. Läkartidningen nr 3, 100; 125-130, 2003. (Article in Swedish).
  4. Nordmark E. Prevention förhindra höftluxation hos barn med CP. Fysioterapi 2006; 6-7, 26-28.
  5. Andersson S, Arner M, Hägglund G, Larnert G, Lauge-Pedersen H, Nordmark E, Sommerstein K, Westbom L.CPUP- Uppföljningsprogram för cerebral pares. Årsrapport 2006. ISBN 91-975284-9-8.  http://www.cpup.se/online/uploadedFiles/100_CPUP_arsrapport_2006.pdf
  6. Arner M, Gudmundsson C, Hägglund G, Lauge-Pedersen H, Lindegren P, Nordmark E, Sommerstein K, Wagner P, Westbom L.CPUP- Uppföljningprogram för cerebral pares. Årsrapport 2007. ISBN 978-91-976019-3-1. Available at: http://www.cpup.se/online/uploadedFiles/102_ARSRAPPORT2007CPUPV2.pdf
  7. Arner M, Gudmundsson C, Hägglund G, Lauge-Pedersen H, Lindegren P, Nordmark E, Sommerstein K, Wagner P, Westbom L.CPUP- Follow up programme for Cerebral Palsy. Annual report 2007. ISBN 978-91-976019-3 . Available at: http://www.cpup.se/online/uploadedFiles/102_ARSRAPPORT2007CPUPV2.pdf
  8. Arner M, Gudmundsson C, Hägglund G, Lauge-Pedersen H, Lindegren P, Nordmark E, Sommerstein K, Wagner P, Westbom L.CPUP- Uppföljningprogram för cerebral pares. Årsrapport  2008. ISBN 978-91-976019-3. Available at: http://www.cpup.se/se/images/uploadedFiles/107_CPUP%20arsrapport%202008.pdf  
  9. Arner M, Gudmundsson C, Hägglund G, Lauge-Pedersen H, Lindegren P, Nordmark E, Sommerstein K, Wagner P, Westbom L.CPUP- Uppföljningprogram för cerebral pares. Årsrapport 2009. ISBN 978-91-976020-5-1. Available at: http://www.cpup.se/se/images/dokument/CPUP_arsrapport_2009_1008.pdf
  10. Arner M, Gudmundsson C, Hägglund G, Lauge-Pedersen H, Lindegren P, Nordmark E, Sommerstein K, Strand E,Uddenfelt Wort U, Wagner P, Westbom L.CPUP- Uppföljningprogram för cerebral pares. Årsrapport 2010. ISBN 978-91-976020-5-1. Available at: http://www.cpup.se/se/images/dokument/CPUP_arsrapport_2010_1008.pdf
  11. Arner M, Asmundsson J, Gudmundsson C, Hägglund G, Lauge-Pedersen H, Lindegren P, Nordmark E, Rodby-Bousquet E,  Strand E,Uddenfelt Wort U, Wagner P, Westbom L.CPUP- Uppföljningprogram för cerebral pares. Årsrapport 2011. ISBN 978-91-976020-5-1. Available at: http://www.cpup.se/se/images/dokument/arsrapport2011.pdf  

 

Referee reviewed supplements.

1.    Nordmark E. Att hjälpa barn med CP att gå. Sjukgymnastdagarna 1997. Abstract.p 17

2.     Nordmark E, Andersson S, Hägglund G, Westbom L. Follow-up programme for children with cerebral palsy in southern Sweden –briding research and clinical practise.5th Nordic Research symposium in Physiotherapy.Reykavik, Island, June 22-24, 2000.Final programme and Abstract. p 155

3.    Lundkvist A, Nordmark E. Actual and estimated change in gross motor function in children with cerebral palsy 5 years after Selective Dorsal Rhizotomy. Nordic Physiotherapy Conference, Helsingör, Denmark 2005. Abstract, p 101-102.                                                                          

4.    Nordmark E, Lundkvist A, Westbom L, Lagergren J, Andersson G, Strömblad L-G, Blennow G, Lund University Hospital, Sweden. Outcomes and clinical experiences 5 years after selective dorsal rhizotomy. European Academy of Childhood and Disabilities, Barcelona 2006. Rev Neurol 2006;43 (Supl 2):S50-51                                                                                                                                    

5.    Westbom L,Nordmark E,Edholm K, Stenberg K, Karlsson E,Hagglund G. Nutritiononal status in children with cerebral palsy in a total population.European Academy of Childhood and Disabilities, Barcelona 2006. Rev Neurol 2006;43 (Supl 2):S1                                                              

6.    Nordmark E. Health promotion of adolescents with cerebral palsy-empirical data.Medizin für Menschen mit geistiger oder mehrfacher Behinderung. Suppl, 2007 Sep 4: 21-23. ISSN 1614-6751.

7.    Nordmark E, Hägglund G, Lauge-Pedersen H, Wagner P, Westbom L. Development of lower limb range of motion from early childhood to adolescence in cerebral palsy- a population based study. Dev Med Child Neurol Febr 2009, vol 51 Suppl 2. P 42.                                                                             

8.     Westbom L, Lundkvist Josenby A, Wagner P, Nordmark E. Growth in children with cerebral palsy during five years after Selective Dorsal Rhizotomy (SDR). Dev Med Child Neurol Febr 2009, vol 51 Suppl 2. P 80

9.    Nordmark E, Gummesson C. Innovative assessment to promote lifelong learning (accepted International Council for Open and Distance Education, ICDE Feb 2009).  Available at: http://www.ou.nl/Docs/Campagnes/ICDE2009/Papers/Final_Paper_366Gummesson.pdf

10.  Gummesson C, Nordmark E.  Promote professional development in an inter-professional course (accepted International Council for Open and Distance Education, ICDE Feb 2009). Available at: http://www.ou.nl/Docs/Campagnes/ICDE2009/Papers/Final_paper_367gummeson.pdf

Text books and websites

  1. Adlerton A-K, Nordmark E. Sjukgymnastik – ett pedagogiskt perspektiv. Holmström E, Johnsson B, Lundblad K (red), Sjukgymnastik i historisk belysning. s 43-66. Studentlitteratur 1993. (Swedish)
  2. Nordmark E. Sjukgymnastik inom barn och ungdomshabilitering. Sundén B.(red). Sjukgymnastikens frontlinjer, förebyggande verksamhet, habilitering och rehabilitering. Socialmedicinsk tidskrift, nr 5-6; 226-229, 1994.
  3. Nordmark E, Orban K. Pediatric Evaluation of Disability Inventory, PEDI. Translated and adapted by permission Center for Rehabilitation Effectiveness, Sargent College of Health and Rehabilitation Sciences, 635 Commonwealth Avenue, Boston, MA 02215-1605 USA. Svensk version Psykologiförlaget AB, 1999.
  4. Nordmark E. Cerebral pares. Beckung E, Brogren E, Rösblad B (red). Sjukgymnastik för barn och ungdomar. Studentlitteratur AB, Lund, Sweden. 2002 (Swedish).
  5. Nordmark E, Palm L. Cerebral pares. GrowingPeople AB, 2006. Available at: http://www.growingpeople.se/templates_GP/GP_overview2.asp?id=5457
  6. Gummesson C, Nordmark E, Olseni  L. Nätbaserad undervisning. Sjukgymnastutbildningen i Lund 100 år 1909-2009.  Red. Adlerton A-K  m fl   [Lund: Avdelningen för sjukgymnastik, Lunds universitet]; 2009. Libris. ISBN 978-91-633-4556-2
  7. Nordmark E. Barn med Cerebral Pares (CP). Hallström I & Lindberg T (red.) Pediatrisk omvårdnad. Solna: Liber 2009.
 
Accepted for publication:

 
Financing:

The Region of Skane, Linnea & Josef Carlssons Stiftelse, Stiftelsen för bistånd åt rörelsehindrade i Skåne, Folke Bernadotte stiftelsen,Promobilia,RBU, Sunnerdahls stiftelsen.

 

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Last Modified: 2012-05-16